Langerhans Cell Histiocytosis (LCH) – Rare Disease Day 2012

Since today is Rare Disease Day, I decided to recap our experience with Langerhans Cell Histiocytosis (LCH). Langerhans cells are immune cells that are normally present in the skin and mucosa. LCH happens when immature Langerhans cells behave like cancer cells – proliferating, and sometimes travelling through the blood stream to end up in other…

Follow-Up CT Today (Updated)

UPDATE AT BOTTOM Today Elijah will have a CT Scan to follow up on some lesions in his lungs. They are probably scar tissue, but the doc is keeping an eye on them. Here is what we are looking at. Imagine you sliced the top of his body off at the shoulders and then looked…