The Sticky Sickly

We managed to make the week interesting, even though we were stuck in the house feeling ill.¬†Poor little Elijah spent a week feeling crummy, and spent a lot of time with Diego and was very generous with his germs. Even still, he wanted to be like his big brother and get his hair painted after…

Memorial Day Weekend Staycation

We were craving some adventure when the Memorial Day weekend was approaching. We considered Chattanooga and Dollywood as options, but we waited until the last minute…again, to make plans, so hotels were scarce, expensive or crummy. So, we opted to stay a few nights at the Marriott resort near Stone Mountain. It fulfilled the boys’…

Langerhans Cell Histiocytosis (LCH) – Rare Disease Day 2012

Since today is Rare Disease Day, I decided to recap our experience with Langerhans Cell Histiocytosis (LCH). Langerhans cells are immune cells that are normally present in the skin and mucosa. LCH happens when immature Langerhans cells behave like cancer cells – proliferating, and sometimes travelling through the blood stream to end up in other…

From Now On, Rice is an Outside Toy [Megapost]

Aaack, my brain is melting! No, not hurting, just melting. Too much “adventure” lately. The toddler-people have trampled me and chewed holes in my clothes. I have loads of catching-up to do, blog-wise. I wanted to do a cute story for every event along the way, but catching child-vomit in cloth diapers for the last two weeks has wanned my interest.

Three, Two, One, Vinblastine

Yesterday (Friday), Elijah *finally* had his last planned dose of chemo. In three weeks, he will have a full-body PET scan, and if it is at least as good-looking as his previous scan, then he will go to an observation schedule of check-ups every month, then every three months, then 6 months, then annually. He…

Ooooh. Ahhhhh. Yeah, You Might Want to Just Ignore This One.

I think I might dance and giggle. OF COURSE there was a Facebook app that lists a history of my status updates, and now I have brought them here, only slightly edited. To overwhelm your mind. To keep them as mine. ALL MINE. Woah-ha-ha-haaa! Amy If you’re happy and you owe it, hug a Vet!…

If you start using the potty, I’ll laugh at your poo with you.

Scrubbing poo out of the carpet before breakfast is not the best marker of a good day. That’s OK. I’m keeping my eyes on the Prize.  We are planning our escape to an undisclosed location *.* at an undisclosed time. Having bumbled through the morning with my free-day-at-the-children’s-museum virus, I put the kids down for…

I need a Tuesdayectomy

Apparently the unpublished price of admission for Vacation Bible School is one fever for each participant, to be distributed immediately to said participant’s doting mother. Well, I haven’t had Ian and Isaac’s fever *yet* but I did acquire a sore throat and a certain bleariness. I suppose it was worth it to observe Ian’s carefree…

This week has been a blast

Spring is here and the diapers haven’t even melted yet. Every morning I’ve been playing Waffle House with my new cast iron two-burner griddle. The item apparently on the boys’ menu is pancakes. I mixed it up one day and made them SpongeBob Eggs. Isaac ate his right up, but Ian only wanted to talk…

The Elijah Cannon: Part 4, Treatment Begins

I was amazed by the size of the CHOA Egleston NICU, the quietness of it, the professionalism, and the hosptality. We could tell immediately that they had “it” figured out here. They understood that the experience was more than a baby in a bed – that each baby comes with a family, and each family…